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Take preventative measures against serious and life-threatening complications Patients should consider wearing a MedicAlert bracelet to communicate their EDS status All patients with EDS should be referred for genetic counselling and appropriate specialists Beta blockade in vascular EDS has been shown to reduce mortality General measures Children may benefit from protective pads and bandages Contact sports or activities that will raise intracranial pressure (like playing the trumpet) should be avoided to prevent undue trauma The patient may benefit from low-resistance exercise and physiotherapy Consider calcium and vitamin D supplementation to optimise bone density Provide psychological support following the diagnosis Patients should wear a medical warning bracelet inscribed 'type of EDS' Medication Ascorbic acid (vitamin C) has been used to reduce bruising Surgery and wound care Surgery should be carried out with caution given the risk of vascular complications Wounds should be carefully closed via sutures without tension Deep stitches are recommended

Howard Engel

Sutherland I, Willner P

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