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Jilin Univ

"When we interviewed the woman who sent it, the time points matched up perfectly with the most stressful two months of her life, when shed broken up with her partner, had other family issues, and was looking for a job and a place to live

She currently leads the natural history study for Ornithine Transcarbamylase Deficiency and her current project work aims to better understand infantile forms of Niemann Pick Disease Type C (NPC) in collaboration with International Niemann Pick Disease Registry (INPDR) and several UK metabolic centres